Eye exams and Urinalysis

Everyone who takes hydroxychloroquine aka Plaquenil or any other chloroquine drugs long term should get their eyes checked yearly and on a regular basis. I went to get my eyes checked a couple weeks ago, a full exam that included a field vision test (like playing a video game) and taking a photograph of the […]

Week 8 on Estradiol cream

Week 8 on Estradiol cream

I had a mini dilemma wrapped around my upcoming GYN appointment. My ex-rheumy called me on her last day to recommends a GYN who specializes in vaginal atrophy. She said she had asked around for me and that this group was great. Great! I call to make the appointment with the doctor she referred me […]

Flare up

Flare up

I’m flaring, right now, as I type this. Everyone flares differently. I used to search “what is a flare up?” or “what does a flare up feel like?” To compare what I went through and see if it counted because (as you may have noticed) I question my symptoms and my thoughts more than I […]

I need to do better

I need to do better

I  realized I missed my infusion TWO WEEKS after I missed it. My last infusion was scheduled for the day before my hubby’s birthday and in the runaround of getting him something, I forgot about my appointment. I think back to that day and what I was doing instead of getting my infusion was buying shoes for […]

Introducing: My Autoimmune Struggle

Introducing: My Autoimmune Struggle

I have multiple autoimmune disorders that my doctors can’t quite pin down. It’s some crazy mix between Lupus, RA and mixed connective tissue disease, with a blood clotting disorder (Antiphospholipid Syndrome) to boot. I also have diagnosed Endometriosis (with recurrent cyst ruptures) which is a co-morbidity to autoimmune disorders. Recently, I’ve discovered I also possibly […]