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Lunar Eclose: Autoimmune Living Outgrowing my cocoon, one day at a time

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Recent Posts

To 2nd WFH job, that is the answer
Finding missing hope
My kingdom for an antihistamine
Diagnosis: Mixed Emotions
The perils of weeding

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I have a beautiful instrument called a Viola Da Ga

I have a beautiful instrument called a Viola Da Gamba, which translates to "viol of the knees" I haven't been able to play it for longer than 5 minutes at a time because holding it between my legs was just WAY too painful. Normally, this isn't an issue with someone who doesn't have painful, arthritic joints, but for me, it was self-inflicted torture. But alas, an amazing viola da gambist gave me the amazing idea of using yoga blocks to support the instrument and hold it up so I didnt have to use my legs and it has been a LIFE CHANGER. I'm going to practice right now and I'm SO EXCITED about the prospect of not having to halt my progress due to my creaky knees. I might have to send this woman all the proceeds of my first concert lol, or maybe just a really nice gift 😝 .
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#autoimmunewarrior #autoimmunediseases #fibromyalgia #fibromyalgiawarrior #rheumatoidarthritis #lupus #lupuswarrior #endometriosis #endometriosisawareness #plaquenil #blog #blogger #xarelto #lifeblogger #humor #laugh #ankylosingspondylitis #antiphospholipidsyndrome #chronicillness #chronicpain #painmanagement #rheumatoidarthritiswarrior #onedayatatime #bloggerlife #violadagamba #violadagambasociety #earlymusic #practice #lingling40hours #lingling @lingling40hrs

This is the perfect example of looking fine and be

This is the perfect example of looking fine and being a mess internally. I was suffering through MAJOR brain fog yesterday when this picture was taken to the point where I was manic. I couldn't keep a straight thought or focus and I was everywhere. .
Later in the day, I went to the supermarket with my hubs and realized towards the end of the trip that my hips were starting to lock up on me and the pain from walking longer distances was back. I cried because I felt stupid. I had just been writing an article for my blog the day before on how I had stopped my search for a mobility aid because I'd been feeling better about walking. .
My hubs, being amazing, brought me back from the edge and reminded me that the path to healing is not linear. Thank you for that, love. You knew exactly what to say❤ .
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#autoimmunewarrior #autoimmunediseases #fibromyalgia #fibromyalgiawarrior #rheumatoidarthritis #lupus #lupuswarrior #endometriosis #endometriosisawareness #plaquenil #blog #blogger #xarelto #lifeblogger #ankylosingspondylitis #antiphospholipidsyndrome #chronicillness #chronicpain #medicinalmarijuana #painmanagement #rheumatoidarthritiswarrior #onedayatatime #bloggerlife #brainfog #mobilityaid #sicknotugly #nikkacosta #nikkacostavibe #ishouldgetaviators
#imakethislookgood @officialnikka vibes

Nothing like feeling tired and needing rest, but l

Nothing like feeling tired and needing rest, but laying down is crazy painful. Also, noticing that I'm swollen all over, AGAIN. We have noted that I flare when I get cold and have tried to keep me from getting cold when we go out, but its creeps into my bones no matter how close my husband drops me off at the door while he finds parking, or how many layers I drown myself in. Extreme heat triggers me too. Am I just going to be stuck indoors the majority of the year?!? How do you deal with this?
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#autoimmunewarrior #autoimmunediseases #fibromyalgia #fibromyalgiawarrior #rheumatoidarthritis #lupus #lupuswarrior #endometriosis #endometriosisawareness #plaquenil #blog #blogger #xarelto #lifeblogger #whatdoido #ankylosingspondylitis #antiphospholipidsyndrome #chronicillness #chronicpain #medicinalmarijuana #painmanagement #rheumatoidarthritiswarrior #onedayatatime #bloggerlife #triggered #flareup #extremecold #as #pain

The largest organ of the human body needs love too

The largest organ of the human body needs love too. At my dermatologist appt right now and I have the sneaking suspicion that my dermatologist gave me the wrong medication for my skin. Also had to harass them for my biopsy results. Honestly, though, who watches the watchmen?
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#autoimmunewarrior #autoimmunediseases #fibromyalgia #fibromyalgiawarrior #rheumatoidarthritis #lupus #lupuswarrior #endometriosis #endometriosisawareness #plaquenil #blog #blogger #xarelto #lifeblogger #humor #laugh #ankylosingspondylitis #antiphospholipidsyndrome #chronicillness #chronicpain #medicinalmarijuana #painmanagement #rheumatoidarthritiswarrior #onedayatatime #bloggerlife #dermatology #rash #dermatologist #medicalpractice #practicedoesntalwaysmakeperfect

AMAZING LAST MINUTE DINNER ALERT! So we haven't be

AMAZING LAST MINUTE DINNER ALERT! So we haven't been to the market in a few and at about 6:30pm we looked at each other like "what the heck are we eating for dinner?!?" After raiding the pantry and fridge, I realized we had a lb of pasta and no pasta sauce, a pack of frozen spinach we forgot about in the freezer, eggs, milk, bread and a block of cheese. I looked online and found an awesome recipe on "errenskitchen.com/spaghetti-with-spinach-sauce/" where you blend (or food process) the spinach, garlic n cheese to make the sauce, combined pasta, and presto chango: a great meal! Just wanted to share an awesome, fast delicious meal that you can prob make with the stuff you have hiding in the back of your freezer/cabinet. Happy cooking!
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I've been trying to get on my stationary bike ever

I've been trying to get on my stationary bike everyday but I don't sense any difference in my energy level or weight. I'm going to keep going but GAH, damn it all!
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Story time! My cat has her own little Xmas tree an

Story time! My cat has her own little Xmas tree and she cherishes it.It's been up since Christmas 2018 and sits next to her food bowl. The other day, while reorganizing some furniture, my husband filled her bowl and moved it to another wall. Our cat, hungry and seeing that my husband is coming with the food bowl, runs over and stands next to her tree. When he kept walking she just stood there and watched him put the bowl down a couple feet away in another corner. My husband and I watched as Caly just sat by her tree instead of walking over to eat. WHAT. I told my husband to put the bowl back next to her tree, and Caly started to eat. ❤❤ my heart nearly exploded. Fast forward to today: Caly sat next to her tree while I walked by and I noticed the lights on her tree had died "oh no!" I grabbed some extra lights we had, picked up her tree and took all the cat toys, broken lights and ribbon off of it and she came over and watched me. It was as if she was asking me "why you take it apart??" I got the new lights, decor, and cat toys on it and plugged it in and I swear she sat by her tree and looked at it with glee. She gave me so many nuzzles and cat hugs. She was such a happy cat now that her tree was back (and this time with extra lights!) This cat really loves her little Christmas tree, and we will never take it down.❤😻🎄
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He left me this beautiful note on my desk. Its sim

He left me this beautiful note on my desk. Its simple, but meant so much. I have been having a tough time and I can't tell you the flood of warmth and love that came over me when I found it.
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He is my partner in crime and the bard of my dreams. He really does an amazing job of making me feel loved, supported, and protected. I only hope I do the same for him every day of our lives.
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Totally not a fitness/diet person. But sometimes I

Totally not a fitness/diet person. But sometimes I like to eat something a little healthy. Dinner was a lovely zucchini enchilada with brown rice, tomatoes, beans, corn and onions. Who knows, maybe ill get my shit together long enough to lose weight.... Looked kinda pretty too :)
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