“Progessive disease”

“Progessive disease”

I have been suffering with back pain for months. I told me GYN about it, he said it was likely the two cysts I currently have on my ovaries. Valid argument. The primary care doc told me to take tylenol and stretch. He said it should go away soon enough. I started stretching and moving […]

IUD Battle Scars (TMI warning)

IUD Battle Scars (TMI warning)

I had to stop the birth control pill. My doc and I discovered that was causing a hormonal I’m balance and killing my poor cells. My GYN didn’t have an explanation, but he seemed to be pleased with how much better I did. Unfortunately, after a couple of months off the pill, my endometriosis reared […]

Actemra: Act 2

Actemra: Act 2

I had been receiving the Actemra infusion for almost a year until I snapped.   Just like clockwork, every 4 weeks, I’d go into the infusion clinic and get hooked up to an IV. An hour and a half each time. If you are a lucky infusion recipient, you will be assigned to a nice clinic with […]

Ray of hope

Ray of hope

Things got a little out of control I’ve taken a break from writing and sharing and it had pretty much everything to do with mental health. I lost the desire to write and share and I truly apologize. It can be categorized as extreme self-care to relieve crippling depression. I was ripping much-needed reprieve from my own […]

Medicinal Marijuana

Medicinal Marijuana

While I lived in New York I was approved into the medicinal marijuana program. Overall, the process of obtaining certification was easier than I thought. I brought it up to my rheumatologist (which I was nervous about doing) but she thought it was a great idea. She thought it’d be a great alternative to the […]

Eye exams and Urinalysis

Everyone who takes hydroxychloroquine aka Plaquenil or any other chloroquine drugs long term should get their eyes checked yearly and on a regular basis. I went to get my eyes checked a couple weeks ago, a full exam that included a field vision test (like playing a video game) and taking a photograph of the […]

Week 8 on Estradiol cream

Week 8 on Estradiol cream

I had a mini dilemma wrapped around my upcoming GYN appointment. My ex-rheumy called me on her last day to recommends a GYN who specializes in vaginal atrophy. She said she had asked around for me and that this group was great. Great! I call to make the appointment with the doctor she referred me […]

Flare up

Flare up

I’m flaring, right now, as I type this. Everyone flares differently. I used to search “what is a flare up?” or “what does a flare up feel like?” To compare what I went through and see if it counted because (as you may have noticed) I question my symptoms and my thoughts more than I […]